Wednesday, December 23, 2015

Our medically fragile child can't get sick until 2019!

My medically fragile child can't get sick until 2019!


It's complicated but let me try and explain.
(DISCLAIMER: I am only going off what I see in the news. I do not, and never have, worked at either place. This is my view as a mom with a special needs/medically fragile child) 

A partnership between a clinic and hospital
 For the past 80+ years Marshfield Clinic and St. Joseph Hospital have worked side by side in providing central Wisconsin some of the best care around. Their hallways are connected and it is hard to tell when one ends and the other begins. This is the same with the doctors. The 20+  clinic doctors that care for our son know every time he is in the hospital because they are the same doctors that see him while he is there. There is a coordination of care between the two, and it has been wonderful for our family! I love the fact that they all know our son and our family. I love the fact that I don't have to explain everything about our son 100 times, because that would take all day. They already know. And that is a very good, rare thing.
Things are changing 
Lately though, there is fighting between the clinic and hospital. I think it comes down to money and greed, although it is being sold to the public as "providing better care and more options."
It started with this announcement... MARSHFIELD CLINIC UNVEILS NEW ADDITION (This story covers a different location of the clinic, but they are doing the same thing to our local clinic) Sounds great right? I thought it was too at first. 
  Then this came... ST. JOSEPHS-NO PLANS TO END SERVICES Basically, they are trying to not upset the public. Most of the doctors that provide care in the hospital are actually employed by the clinic. SOOooo, when the clinic open a new facility, they will go over to the new place. The nurses that staff the hospital, are employed by the hospital, and have to apply to the new facility if they want to work there. This leaves a split in the workers. 
So St. Joseph decides that they need new doctors and does this... MINISTRY HEALTH SEEKS PARNERSHIP WITH UW and this... ST. JOSEPHS HOSPITAL TO BECOME A SMALLER FACILITY 
Meanwhile Marshfield clinc does this... MARSHFEILD CLINIC MOVES UP PLANS FOR HOSPITAL 
And the latest news is not any better... 3 HOSPITALS FINED FOR SAFETY PROBLEMS Not that this is a big surprise. With all of the back and forth bickering and drama, a lot of staff are leaving to find different places to work. What this means for us though, is that our son who is on medicaid because he is disabled, may not get all of his care covered by insurance. This is more money out of our pocket. I am not sure how that is going to happen with our one income household.
And then, what kind of feels like a stab in the back, this happens... FIRST LOOK AT THE PLANS FOR THE NEW HOSPITAL 
What this means to us
All of this drama. All of this uncertainty. It makes my heart hurt when I think about this situation that we are being forced into. I can't even imagine what it must be like to work at either place. 
Among all of this crap is another issue... St. Josephs is a Children's Miracle Network Hospital the new hospital is not, and probably won't ever be. If this goes away we can say good bye to our meal tickets when we are in doctor appointments all day. We can say good bye to the child life specialists that help calm our son during doctor visits, surgeries, and hospital stays. The community will suffer from the lack of support that the Children's Miracle Network provides.
Nothing has been said about this new hospital even accepting Medicare. If all of the doctors that know our son move to the new facility, and we can not go there because they don't accept his insurance, what will happen to the care that he gets? Will I have to explain everything to the new doctors? 
Any time a new place opens there are kinks and bumps that need to be worked out. The new facility is set to open in 2018. I don't want to even go there until it has been open for at least a year. This means OUR MEDICALLY FRAGILE CHILD CAN'T GET SICK UNTIL 2019! This is highly unlikely though. I pray every day that he doesn't get so sick that he has to be admitted into the hospital. Not that I don't want to see the doctors and nurses that work there, or that I think our care will be anything less then great, but I just don't want to have to deal with any of this. I don't want to think of life without Children's Miracle Network. I don't want to think about how much it is going to cost to get the care that our son needs. I don't want to choose. I don't want to explain everything about our son. I don't want to think that the new doctors don't know what they are doing and don't have our best interest in mind. I don't want to believe that it is all about money. I really want to believe that this will all work out, but I don't want to deal with it until it is over.
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  1. What a tangled web of a mess! The worries and anxieties of a special needs parent are never ending. Just when you think you've got things all figured out, someone throws a monkey wrench into the plan. I hope things will all work out smoothly for you.

    1. Thanks! I am sure it will because it always does, but it is scary until then.

    2. Thanks! I am sure it will because it always does, but it is scary until then.