Monday, June 29, 2015

More updates for the readers of X-Linked

Because I was gone from the blog for so long I thought I would give all my readers some more updates on what they missed out on. (FYI if you click on the "Follow Me" buttons at the end of this post, you won't miss out on so much. It is way faster to update a status or add a pic then to write out a whole post ;) ) I also don't want to make this post too long so I am going to split it up into a few different ones.

This month brought something new and something familiar to us... RSV and a hospital stay.
Always smiling

Loves the big yellow balloon
Up until the age of 2 he was able to get an extra shot during flu season that would prevent RSV, but this year (just because he is 2) he didn't get it. AAAnd that landed him in the hospital. He was there, visiting his long time friends (aka nurses and other staff), for 6 days! He handled it very well and after a few days still managed to give me a smile every time the camera came out. That kid. That smile. THAT is what keeps us going. It is our payment for everything else we have to go through, including sleeping on a very uncomfortable couch in the hospital for 6 days.

We signed up for our first 5K! The #denimdash2015 was a great cause. We raised money for people with Rare diseases everywhere. This money went to helping people get connected to other people with the same disease, funding to help with medical costs, and research to find cures. This is the team fundraising page... L1 legends To find out more about Global Genes and how they may be able to help you click HERE

Raising money for a good cause
 This is also the time of year when the sap runs through the trees and gives them nourishment to grow. It is also when people tap the trees to make maple syrup. That is what we did in March. This is not a hard process, just very time consuming. AND to cook it down from sap into syrup takes even longer. It takes 30-40 gallons of sap to make 1 gallon of syrup! It took us just over a week to cook.

Cooking down maple syrup

Even though it is a lot of work, the ending result is so sweet. Everything tastes better when you make it yourself!

It is so sweet!

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