Monday, June 23, 2014

Took some time off but...II AAAMMM BAAACK!


 Wow I looked when my last post was...over a month ago! I don't know if any of you have missed me but I went to a bad place in my head. Life has gotten hard for us and every time I spoke it was with anger. It went something to the tune of, "Life is not fair!", "Don't people understand?", "We didn't ask for this life!", "Don't people know that we are doing the best we can?", "Why don't more people want to help us?" So I choose to not say anything at all.

Well our situation still has not really changed but I have realized that life is not fair, most people don't REALLY understand our situation (because they are not in it), we didn't ask for this life (but I know it is forming me to be a better person), doing our best may not be good enough for some people but we have to keep moving forward anyway, people are busy, and that no matter what I know that God, and my husband are there for me. We are in this together and we will be ok. (and I have some of the cutest kids)

Not much has happened in our world anyway except a few things.The NICU that we spent almost 2 months in had a 45 year celebration that we went to. We had a few minutes of fame on a local news channel. (click the underlined/highlighted words to watch to video) The nurse they interviewed was our primary nurse. Then they interviewed us. What a great way to spend fathers day! (of course I didn't have time to put on any makeup and the wind was blowing pretty hard so my hair was a disaster but that's life, right?) It was so nice to see everyone outside of the hospital and to connect with other people that have gone through the same situation.

We also got to tell our story on CNN web site! They are in the process of researching people that are raising a special needs child. I hope that they decide to cove this story more in depth! Please feel free to read and share the article by clicking on the underlined/highlighted words above. I hope someone out there sees our story and says "hey, I know someone with that!" and gets in touch with me. I would like to find someone else that has this same disorder and talk about what they have gone through.

It feels good to be back. I hope to continue posting again, as I am in a better place. Thank you all for your support and for listening (reading)

1 comment :

  1. Hey Tracy didnt know if you knew about it or not but there is a facebook group called L1CAM Group. Its nice to know that we are not alone! :)