Wednesday, May 14, 2014

An Urgent Message!!!

I have decided that I no longer live with a husband, 2 boys and a dog. After today I now know that I live with creatures that came from the planet Nahm nahm nahm.

They are trying to communicate to their leader by repeating the name of their planet over and over. They must be getting a signal some how. And when they do, they change what they are saying to other words like da da da. (This is how I know the hubby is in on it. That's what they call him) They do weird things like stick their tongues out, spit and drool everywhere. I have yet to know what that means.

From the day they arrived, they have had complete control over me. I was not aware of this (cause they are so darn cute) until tonight when it finally hit me that I can no longer eat a warm meal, sleep through the night, or hear myself think because they are so loud. Apparently they need to yell in order for their home planet to hear them.

The dog is in on it too. I hear him bark and see nothing. They must be able to become invisible to humans. He also likes to go swimming in freezing cold ditch water, and eat cow poop. I give him the earthly option of dog food, but if he can choose...well, I think you can guess which one he picks.

I am urging you to evaluate "your family" and please report any weirdness to me, by commenting on this post or email. We need to start a database of any suspicious activity for the report that I will be sending out to the Ghost Busters and Men In Black so they know what to look for when they are on stake out and when they apprehend theses creatures. Thank you for your corporation in is matter.
Sincerely, your human friend,

Wednesday, May 7, 2014

Special needs clinic

If you are one of the "lucky" ones who even know what "Special needs clinic" is you know how our day went yesterday.

Basically, because our son has soooo many doctors that care for him, they like to get together about every 6 months and evaluate were he is at now and share their goals for his care for the up-coming months.

Some good things about it:
  • It allows a unity of care
  • Everyone is on the same page
  • It gives the doctors a chance to see what the other doctors see, as they all only take care of their one area of expertise
  • We make one trip to the clinic and they come to our room to see us = less trips in and less walking for us
  • They all get to see how he is on the one day, good or bad
  • The final report that we get is an interesting read
  • They all know what the other doctors are looking to accomplish or their concerns 
Some bad things about it:
  • Our day starts very early and ends very late
  • Noelie starts off good and strong but gets very tired as the day goes on
  • They make him "show off" all at one time and sometimes he doesn't want to
  • This time we had to bring our youngest and every toy in the house to keep him occupied  
 There really are more good things than bad things about Special Needs Clinic. I feel so blessed to have this opportunity for our son. I really love how all of his doctors are under the same roof and all want to be on the same page with his care. Having that unity is so important. It makes our lives so much better. It definitely cuts down on the amount of explaining I have to do. They also have access to the hospital records and the therapy people's records that come to our house every week, which is also convenient for us. The all knew about our hospital stay on the 25th, and can weigh in about that. They can look at the therapist weekly notes and see how he is doing on a weekly basis. I know a lot of people out there cannot say the same thing.

So here was a recap of our day, so you get an idea of what to expect if you ever have a clinic like this that you need to go to.

The night before (I stayed up till 10:30pm getting everything ready)
  • Put kids to bed so you have a clear mind to remember everything
  • Get any toys, formula, snacks, braces, equipment and questions rounded up and put by the door
  • Lay out clothes for the family to wear in the morning
  • Shower
  • Go to bed
That morning (check in time for us was 7:45am)
  • Get up at 5am and feed the youngest his bottle
  • Administer coffee through your IV asap (don't waist time drinking it)
  • EAT
  • Get the fam dressed
  • Pack everything into the car
  • Drive to the clinic (we only have a 15 min drive)
  • Check in and settle into your room

Once you are there (This is the run down of our day this time. Next time may be different): 
  • Get vitals, weight and height
  • See PT to look at adjusting kid cart and talk about getting a stander. Show off new skills like picking up blocks, following a light, and turning the head to both sides
  • Show off to a speech therapist their new eating skills (Noelie did REALLY well here)
  • Talk with a nutritionist about how overnight and bolus feeds are going and how to add more water
  • See another PT that measures range of motion and what age your kid is "really" functioning at (I forgot to ask what she thought that was. Guess I wait for the paper packet)
  • See the muscle doctor for Botox injections into the inner thigh and both thumbs to help loosen muscles
  • The Orthopedics people want him in foot splints while standing in the stander, so they take casts of his foot. We have to come back to make sure they fit once they are made
  • A Neurologist comes in to talk about the hospital stay and dealing with seizures
  • Take a lunch break 
  • Meet with the primary doctor for hospital follow up
In case you lost track that was 8 doctors or therapists. Noelie is always bringing joy to everyone he sees, and today was no different. The doctors said he was the star of the day. Everyone was so impressed with his progress and, of course, couldn't believe how big he had gotten and his full head of hair.

Our day at the clinic ended at 4pm! We ran some errands in town and were home by 5pm. The youngest took a nap in the car while we ran errands. Noelie didn't sleep at all, even though he looked like he wanted to. By the time we got home the youngest was wide awake so no nap for mom and dad. :( The only thing I should have done, and didn't, was throw something into a crock pot and turn it on before we left so we had supper ready to eat when we got home.

Monday, May 5, 2014



1. the fact or power of enduring or bearing pain, hardships, etc.
2. the ability or strength to continue or last, especially despite fatigue, stress, or other adverse conditions; stamina: He has amazing physical endurance.
3. lasting quality; duration: His friendships have little endurance.
4. something endured, as a hardship; trial.
1485–95; endure + -ance

1. See patience
Now that we know the dictionary's meaning, let me tell you what it means to me...Motherhood.
Athletes have it. Doctors in surgery have it. Collage students have it. Anyone that plays an instrument has it too. But I had no idea that moms have it too (until I became one)
  • We have to endure waiting to have a baby (if those that are trying and are having a hard time getting pregnant)
  • We endure a loss so great that words can't even begin to explain (for those who have ever miscarried)
  • We endure all the worry when we find out we are going to become a mom 
  • We have to endure 9 months of pregnancy (or the wait if we are wanting to adopt)
  • We have to endure labor (or lots of paper cuts from all the paperwork that goes along with adoption)
  • We endure the heavy responsibility of trying to do the right thing for this little human that we are now in charge of  
  • We endure hours, weeks, months, and sometimes years, of very little sleep
  • When our babies are new, we endure the tears from our little ones (and our own)
  • If our little one is sick, or has special needs, we endure long hospital stays and trying to decipher what the doctors are telling us
  • For those of us with special needs kiddo's, we endure countless hours of doctor visits and therapy
  • For those that are adopting for another country we endure (sometimes) years of flights to strange lands and seeing hardship that we can't even imagine living through.
  • We all endure self doubt and others telling us what they think is right
  • We watch our little ones grow and watch them fall trying to make it on their own 
  • We endure the terrible twos and the teenage years
  • When they move on and leave the house, we endure hours of sleepless night worrying if they are ok
  • When they come to us and tell us the are expecting kids of their own we endure the worry for the baby all over again, as if it were our own.
I never realized the being a mom takes so much endurance. We bear pain and hardships to become a mom, and stay connected to our children as they grow. We have the ability and strength to continue on with life despite fatigue, stress, and other adverse conditions. It is a lasting quality through hardships and trials. 
As Mothers Day is fast approaching I dedicate this to all the moms out there. You are great! You can endure! You can press on! Congratulations, you made it this far! I hope you have a GREAT Mothers day!

Saturday, May 3, 2014

Join me...Week 2

Grab your cup and your bible. Get ready for my first edition of digging deeper. Today, in my cup, I have cinnamon swirl coffee with sugar.

Today I am reading Hebrews 11. This chapter talks about the faith people that followed Him had. The first sentence says "Faith is the realization of what is hoped for and the evidence of things not seen." "By faith we understand that the universe was ordered by the word of God, so that what is visible came into being through the invisible."

It goes on to talk about the faith of Noah having been warned of a great flood that was coming. He was asked to build an arch and was given instructions, but had no prior experience. How was he going to build something he knew nothing about? How was he going to gather all the animals of the planet? How did he know what they all ate? (Being a farmers wife, I know what cows eat but couldn't tell you the first thing about what a grasshopper eats...or were frogs go in the winter. How could Noah possibly know all that? Maybe I should go watch the movie for some incite. If you have seen the movie...did you like it? Did it make you think?)

Abraham was sent on a journey to inherit the promised land and make a great nation, even though he was very old and his wife was sterile. Where was he going? How did he even know which way to head? How was he going to make a great nation and have many descendants? Then he was put to the test and was supposed to kill his son! What?! Why? Then what was the point of it all?

Moses was hidden from the king who wanted to kill all the baby boys. (Having a 4 month old myself I find it amazing that his parents could even hide him at all. Mine cries a lot. At all hours of the day and night.) Then as he got older and could have enjoyed the lap of luxury, instead chose to be mistreated so he could be with his people.

Their faith conquered kingdoms. They did what was righteous. They closed the mouths of lions and put out raging fires. Out of weakness they were made powerful. And even though they were approved because of their faith, they did not receive what had been promised because God saw something better, something greater.

God was with them through their journeys. He told them to do something and, by their faith, they did it. Everything that God said would happen did happen. But they still died. Why? Because He had something greater in store for them. Sure they got to see the miracle happen, but God wanted to show them more. He wanted to show them heaven. 

God never came down and said to me "I am going to make you wait 8 years to have a child. I am going to harden your heart and make you hate every pregnant woman you see. I am going to make you see them everywhere you go until you are ok with what you have. Once you are ok with seeing them, and don't get mad, then I will make you a mother." He also didn't come to me and say "I am going to give you this job at a group home working with mentally disabled people so you are prepared for your first child's special  needs. So you will be able to accept him for who he is, even with his handicap." But this is what happened. At the time I was going through life, just doing what I do, never thinking that it would prepare me for my future. Once I got pregnant, I knew that it might not turn out well. But through my faith I trusted that it would be ok. And it is. It's not perfect. It's not easy. It is stressful. It came with a huge learning curve. But it is ok, and it is exactly what I am supposed to be doing.

Lord, please strengthen my faith in you. You know that I am not faithful 100% of everyday. I am only human and sometimes I question you and what you are doing. Even though I still have questions, give me enough faith to keep going. Help those that are also struggling with their faith. Help to to trust you and to follow you. Help them to know that you have something greater in store for them. Amen

Your turn...  What do you have in your cup? What do you think about this chapter? How have you been faithful? Do you still question Him even though he has shown you miracles?