Monday, March 31, 2014

Reflection series- You are full of surprises

If you were to ask me as a child if this is who my life would be I would have laughed at you. I don't know many girls, when playing house, dream of taking care of a disabled child. I didn't at least. But I am and I wouldn't change it for the world. There are a lot of things that I never would have dreamed I would have done, that I am doing now. I have been challenged by every one of those things. I have surprised myself with just the fact that I even tried must less been good at it.

What are you doing that has surprised you? How have you surprised others?

Reflection series- You are not lazy

I think we all need this reminder from time to time. Some days we may feel guilty for feeling lazy, but those days are important too. A day when I see my son blowing kisses to me is a good day. When I ask him to give me a kiss and he giggles, smiles, and turns his head away as if to say " I know what you want but I am going to tease you and just be cute.", that is a great day. I some times wonder if I can be doing more, which usually leads to questions about what the future holds for him. What happens when he turns 3 and no longer qualifies for the birth to three program? Will he ever go to school? Will he even be able to comprehend what they try to teach, or is him able to smile at me as good as it gets? So many questions, that really don't matter. Not today anyway. We are too busy giving kisses and playing outside. 

Sunday, March 30, 2014

Reflection series- You are informed

I can't say that this one really applies to me, but I know it does to many parents. As of right now, we are not dealing with a classroom, and there are not many other people that have this disorder so there is not a lot of reading and learning that I can do. I hope that all of you out there that are dealing with classrooms and can read up on whatever you child has...I hope you are doing just that. I pray that you are not so overwhelmed with your situation that you can hold your own in conversations with the "professionals". Just remember that you are the most informed person about your child. No "expert" knows them better and that says a lot about you.

Reflection series- You have something to say

I love the last line! Well this is something I have to work on, but haven't really had to yet. There was one time, in the hospital, that really made me mad. I spoke up that time and they are now using the incident as a training tool for new CNA's and Nurses. Basically, because of high census, they moved my son from a private room right next to the nurses station to a room at the end of the hall into a shared room. Not ideal because he can't talk, is a choking hazard, with a low immunity system, but I can get over most of that. I was mad but understood that he was small and they needed the room. The finally straw was doing it without asking my permeation. I found out from my mom who went to visit him and was not in the same room. She called me and told me. Needless to say, I rushed up there and gave them a piece of my mind. The head nurse followed up the next day. I laid into her too (through my tears). She made it right and that was really the only time I had to do anything like that.

I feel really fortunate to only have to give people a piece of my mind one time. The staff at the clinic and hospital really have been very good to us.

How have you stuck up for your child? Do you have to do it often?   

Saturday, March 29, 2014

Reflection series- You care

I am not sure how to elaborate on this. We do care...about everything. What our child thinks about themselves. What others think. We care about the future. We care about what is happening now. We care about family. We care about giving them the best life possible. Sometimes it would be easier if we didn't care so much but we can't help ourselves. We love our children.

Reflection series- You are a fighter

Most of what I am fighting these days is my own fears, doubts, and insecurities. I am also fighting to help my son overcome his next milestone, eating and drinking through his mouth. Some days we do better than others but we keep trying, we keep fighting, we keep pushing through.

What are you fighting?

Reflection series- You are a realist

I always have been. My hubby says I am a pessimist because I can't seem to see the good in the situation. I think I look at the probability of success and failure and can usually guess the outcome. I like to think I have my mind in reality vs. in the clouds on a dream. This is not always a good thing, but it works for me most of the time. I know my child is happy, functioning and moving forward. It doesn't change a lot from day to day but when I look back I can see how far he has come, and that is all that matters.

Friday, March 28, 2014

Happy world Down Syndrome day

Happy world Down Syndrome day 
to all those crazy, kind people! Our son does not have Down syndrome but we can celebrate anyway! Click on the link at to beginning of this post to watch the cutest video that celebrates everyone with Down's. 

Are you celebrating today?

Thursday, March 27, 2014

Noelie is 20 months old!

Sitting up so big! Without help! (20 months old)
When he was younger, and we were going to the doctors a lot more, I would put his weight and height with the picture so I could compare as he grew. But today I am happy to say, I honestly don't know either one. I can take a rough guess but that's all it would be...a guess. I am glad to not know these numbers. When he was first born that is what our life revolved around...numbers. The numbers on the hospital monitors. The numbers that were his head circumference, weight, and length. The limited number of months or years we may have with him. The number of kids that this affects too. Our life revolved around numbers. Today it doesn't! And it feels so good.

At one point I really never thought I would see this day. I remember one day in the NICU I was wondering why. What was the point? Why does this even matter? What life would he have if he did live? What happens if we can't take care of him? I didn't want his days to be spent in an institution where no one cared. (I still don't, but that is not an issue right now)

I was giving up hope. It didn't matter. He didn't matter. After some soul searching and going to church I realized our little boy had weight. In the most literal sense (he weighed 4 pounds), and in a deeper meaning (he meant something). Like all of us, he was put in the planet for a reason. He too has a purpose. One of them (I believe) was to find my cancer. Another one was to help our family get a better understanding of the world of special needs kids. We also had so many people praying for our little guy that I think another reason was to bring people to God, even if for a short time. He has weight in the world. I am thankful for his whopping (roughly) 21 pounds of smiles. And I am happy to celebrate his 20 month birthday!

Wednesday, March 26, 2014

Reflection series- You are loving

I can only hope that my child loves me for all that I do, even if he complains. I don't know if I will ever hear him say "I love you" but I can see it in his smile for now. I hope he knows that all the pokes, tears, stretches, and doctor visits are for his own good. Pushing him along to get him to the be the best he can be.

How does your child show his love for you?

Tuesday, March 25, 2014

Refelction series- You have good instincts

I think this is right on for any parent, not just ones with special needs kiddos. A parents instincts are usually right on. I wish none of us would second guess ourselves but we do. I am right now. Not about my special needs kid, but about my "normal" one. We have had a rough couple of nights. I am very sleep deprived. I feel like I have tried everything to help our little one sleep through the night and nothing has worked. Tonight I am trying one more thing. Trying to trust my instincts. I really hope it works.

What is something that you trusted yourself and it turned out to be right on? Was there something you turned against your gut on, and now regret?

Struggles of the night

Samuel looks so cute, right? Well he is except I don't see much of this during the night time these days. Yep that's right I am going to talk about the "not so pleasant" side of life that most people don't want to talk about online.

Now I realize that he is 3.5 months old. I also realize that he is probably going through a growth spurt right now because he is drinking A LOT of milk. I also know that he seems to miss the closeness and immediateness of breastfeeding. (I am forced to stop so I can be dry by May for a cancer recheck and scan)  But when it is 3:00 in the morning and he is awake but fed and just had his diaper changed but is still crying.... those first few facts go right out the window. Don't get me wrong, I love him to pieces, but the last few nights have been especially rough on me. I feel my patients with him going right out the window.

During the day he is all cute and can nap for 4 hours at a time. I am trying to get a bedtime routine down. He doesn't seem to have a problem going to bed. It is the staying asleep part that is the problem. It doesn't seem to matter what time he goes down, he still gets up around 3am. Then he just naps for 1/2 hour tops and is up again. This goes on till about 6 or 7 when I have finally had enough and just get up for the day. Then around 9 or 10am he is usually down for the count, falling asleep in his swing or on the floor.

So I reach out to my fellow moms...How old was your little one when they slept through the night? What do you do to change their routine? How do you handle them getting up and not wanting to go back to bed? Any advice you can give?

Monday, March 24, 2014

Reflection series- You are understanding

For us, I can honestly say that, we have gotten more support from friends then I could have every hoped for. Any isolation I may feel is really my own fault for not asking. So many of our friends have offered to come over and watch him, have visited us in the hospital during one of our stays, or prayed for us when there was trouble. We have had meals and gift cards given to us to help us through too. All of these things and all of the people in our lives are so appreciated. I can't wait to get out of this hard "season" of our life so we can return the favors and even be able to pay it forward to others in needs. I have cried so many happy tears because of the people in our lives. I don't know where we would be without them.

Do you have people in your life that are there for you unconditionally?

Reflection series- You are growing

I am not sure how fast each of us goes through the chart. I suppose I am in the 60% right now... and Noelie is 1.5 year old. I really do enjoy being with him, making him laugh and smile. Even though we are having to do things like therapy and feeding tubes. The last time I got thrown for a loop was when we got his kid cart. It is good for him. It has a lot of nice features. Everyone else seems to think it is the greatest thing. I, on the other hand, am thrown into a fit a tears because it is a reminder that he has a disability. He may never walk and now it is very obvious. A visual reminder. We work every day in hopes of changing that but coming to this realization is hard. I am sure the next piece of equipment will throw me for another loop but for now I am doing all I can to help him be the best he can be and trying to bring awareness to his disorder.

How have you grown? How long did it take you to move along on the "growth chart"? What throws you for a loop?

Sunday, March 23, 2014

What gets you through?

Some weeks I don't have anything really going on, especially after this crazy cold winter. Sometimes I didn't leave the house for days. Now that it is starting to warm up, I wonder...What got you through the day or week this winter?

Here is my list...
  1. My kids smile
  2. Once a week visit from birth to three therapists
  3. Family
  4. Friends
  5. A phone call or text
  6. Writting
  7. Daily learning of the bible
  8. Sunshine
 What are you looking forward to when the temperature gets warmer?

Here is my list...
  1. No more winter clothes
  2. Open windows
  3. Play time, outside, in the yard
  4. Our yearly trip to a friends cabin
  5. Introducing grass to Samuel
  6. More swimming
  7. Camp fires
  8. Did I say being outside?
This week I feel particularity blessed for the people in my life. We had a good therapy session with birth to three. We went swimming in the local hotel pool. I got my car breaks fixed and the oil changed by a friend while I sat in the house with his wife and all the kids, just chatting and catching up. I got to spend time with my parents. My hubby has off this weekend. Another friend (aka our personal photographer) is dropping in for a chat and to drop off our latest session.  It is weeks like this that I am glad I gave up Facebook. I love connecting with real people, in person.

Friday, March 21, 2014

Reflection series- You're a good learner

In some aspects I feel like I earned a nursing degree with out ever stepping into a classroom or doing an hour of clinicals. Because Noelie is so rare there is not a lot of reading that I can do but I have learned in other ways. My main teacher has been all the nurses and doctors we have. I have said it before and will say it again...I love our NICU nurse. They have taught me how to be a mom and take care of special guy. I would not change a thing about the way our life turned out. Our time in the NICU will always be something I am grateful for.

Who was your main teacher? What have you learned today?

Reflection series- You deserve a break

I want you to really read this. Don't just skim it. Really read it. Our days are filled with household chores, cooking, cleaning, running to doctor appointments, therapy, running after the other kids, and trying to make life as "normal" as we can. Stop...for just a while...and breath. I know it is hard to not feel guilty. As I type this I am thinking about how I need to balance the check book, pay bills, do the dishes or shower, because the kids are sleeping. This is my time to get as much done as possible. I will. It will get done. But this is what I love to do. Writing. Getting ideas out. Hopefully helping you to get through another day. Helping myself get through another day. Take time to enjoy something for you. Don't loose who you are, and remember to breath.

Thursday, March 20, 2014

First day of spring

 
Today is the first day of spring. Where there is equal hours of light and dark. Today the high temp here was a balmy 36 degrees! So what did we do...went swimming with friends, of course. Noelie loved it last summer. Today he seemed to be concentrating and figuring out what was going on. We did manage to get some smiles out so I think he liked it. (Just an FYI, I am starting a fund for a pool house. All glass, in-ground pool and hot tub, kids play area, lots of plants, and grounds keeper to take care of it all. If you would like to contribute....oh well I can dream right?)

The last picture is what it still looks like outside. We are expecting more snow in the next couple of days. BOOOO I am ready for less clothes (aka no winter coats) and warmer weather! 

How about you? What is it like out your front door? 

Wednesday, March 19, 2014

Sweet moments

Same outfit, same day, 2 different kids, 1 year apart. St. Patrick's day 2013 & 2014
Samuel likes his reflection
Just a boy and his dog

What a ham

Sam is just showing some love. I'm not sure if Noelie approves
Sometimes you just have to share some pictures. Check out the tab, right above this post, labeled "Pictures" to see more cuteness. You can also check out our new YouTube channel to watch some videos. The link to YouTube is on the right hand side, under the "About me" section, labeled "Videos"

Tuesday, March 18, 2014

Reflection series- You are blessed

Wow! I don't know about you guys but I am really loving these posts! I celebrate every little thing that both our boys do because I know that it almost never happened. We almost never had kids. Noelie almost never lived. He never (according to the docs) had a chance to do most of the things he is doing. Because I got cancer, there was a moment when, I was worried if I would ever see him grow. Miracles really do happen every day!

Here are some of my miracles...
He loves his drum so much he giggles
Trying to eat with his mouth is hard work, but he is getting better...
...And is finally liking it!
He also likes to hit buttons that make sound and light up

Monday, March 17, 2014

Published story

I just can't tell you how excited I am! I submitted our story to the Global Genes web site and it got published! This web site is dedicated to helping spread awareness to all rare genetic disorders. I am so glad that I came across this site and whole heartily believe in their cause. Please check it our by clicking on the link below.  
http://globalgenes.org


Sunday, March 16, 2014

Made a new page

I took a break from the refection series to make a new blog page. Check it out. It's called Thyroid Cancer, and is my story about my cancer and how it all ties into this crazy thing called life.


Saturday, March 15, 2014

Reflection series- You have a mission

This really hit home for me. It is so true. Helping my son through life has become my mission. He has made me a better person. I may not get it right every day but he keeps me smiling. I can't wait to see his smile every morning. I feel so blessed to have him in my life. I can only hope that everyone can find their mission in life.

What is your mission? What are you fighting for?

Friday, March 14, 2014

Reflection series- You try hard

I have to admit...I do try hard. Some days are harder then others, but I think that is true to life in general. I am very hard on myself and feel guilty about a lot of things. It really helps to have other people around you telling you that you are doing a good job. When you put your heart and soul into something you want it to be perfect, but it won't be. Raising kids is not at all like a school project or a test. You can't study. You can't redo it before handing it it. There is no end or due date. If you don't do well, you can't ask the teacher for an extra credit project to make the grade better. You just have to try your hardest, forgive yourself, and know that it won't be perfect. It is not fair to anyone to expect it to be. I try to keep this in mind at the end of every day and try harder tomorrow.

Are you hard on yourself about something? Who do you have in your life that encourages you? How do cope with the mistakes?

Thursday, March 13, 2014

Reflection series- You are a good parent

I want to take some time and reflect on this. I really do believe that we are all doing the best we can with what we have. I also, whole heartily, believe that our past experiences make us a better person and parent. In my case I got a job at a group home for the mentally handicapped, that I never thought I would get because I had no training, and never really wanted. The thought of wiping grown-ups butts kind of grossed me out, but I needed a job. At the time it was just a job. Working with all women co-workers proved to be a challenge too. But the experiences that I had there had taught me a lot and helped me grow. That job got me ready for the next chapter in my life. Being a mom to a special needs kid. Although I wanted to leave that job sooner then I did, and at times, I hated it, I wouldn't change a thing. I am so grateful.

Have you felt the judgmental stares? Have you been told that you are doing it wrong? Have you heard these things so much that you are starting to believe it? Do you think you are a "bad" parent? I hope not, but if you do, I hope this helps change your mind. Hang in there. You are doing great.


















Wednesday, March 12, 2014

My baby is 3 months old

They grow up so fast! Having Sam has been a completely different parenting experience than with Noelie. At first I was scared to not have all the doctors and nurses around to help take care of him. It is very nice to see him hit all of the development milestones when he is supposed to. I love to see both of their smiles. The girls will be running after them before I know it.  
Noelie has so much to teach Sam, like how to make the toys light up!

Tuesday, March 11, 2014

Better than expected

"Expect the worst, hope for the best." This has gotten me through a lot. There is no way things can really be as bad as I tend to make them out to be in my head. This holds true again today.

Today we met with an orthopedic surgeon as a follow up to the CT scan findings from last week. The CT scan found that our son's left hip was coming out of the socket. This happens to kiddos with low muscle tone or are spastic. Basically, the muscle is too tight and pulls the bone out, or is too loose and doesn't hold it in. Our son has both. The doctor said that it is mild at looks like it is just starting. He said if we work hard at stretching the inner thighs and continue to work on trunk control, crawling, and walking this may fix it's self! This is great news! I went in today thinking that we would be setting a date for surgery (expecting the worst) and we walked out with a renewal of purpose (hoping for the best). Yes we will continue to do all of those things and learned a few new things to add to our therapy sessions. I am so glad that we may be able to avoid surgery and be able to fix this. :)

Monday, March 10, 2014

What a beautiful day

After a record breaking, coldest winter EVER, we finally have a day with the temp being 47*! FYI, we had 56 days that were below 0*. With having Samuel in mid December I really had plan to stay inside and hunker down as much as possible anyway, but this was really crazy. So of course we had to take advantage of this beautiful weather with sledding in the driveway. I know it looks like they are sleeping but the aren't.
This is Sam sleeping 5 minutes after getting inside and undressed. This was his first sled ride ever. I think he liked it.
It really is about the little moments in life. It is these moments that I love. It is easy moments like this that get me through the hard ones. I may be putting the cart before the horse here but I am anticipating tomorrow to be a hard moment. If I prepare for the worse then it can only be better than what I thought it would be. But for now I smile at these little, easy moments.

What it takes for us to leave (for 1 night)

A DATE NIGHT!!!! Yep we finally got one. My parents got me gift certificates for dinner and a movie for my birthday back in January. We finally got to use them this past weekend! And they took both of the boys overnight. With Noelie having some equipment (not as much as he used to have) I need to send along some instructions. The first 2 pictures are for the food pump. How to change the settings and what rates the food has to be run at.

The picture above is all the stuff we needed to take with. That includes the O2 condenser, a play & sleep rocker, a bumbo seat, a bi-pap machine and the water to go in it, the food pump and travel bag, an IV poll, formula, frozen breast milk, 2 bags of clothes, and a floor play gym. We are hoping to get away for a whole weekend sometime this summer. I will post what that takes. I promise, it is way more! The movie was good and the food was ok. I love Chinese for the sweet and sour chicken, that they didn't have. Oh well. The company was great, and it felt good to sleep in. I hope we can do it again soon. If my parents want to watch them. :)

Sunday, March 9, 2014

This is hard

I gave up Facebook for lent (the whole 6 weeks)! This is probably one of the hardest things I have ever done...yes harder then giving birth to 2 babies. It is so easy, with the smart phone, to just check what is going on. Most of the time I would check it while nursing, but I was really on it more than that. A commercial break, a passenger in the car, in the bathroom (laugh if you will), and even while waiting for noodles to boil.

I really want to be living life more instead of having my face looking at a screen. But how can I do that when I get this (see above picture)? This is an email, from Facebook, telling me all that I am missing out on! I can honestly say that I have never gotten one of these. Sad, I know. This must be the devil tempting me. aaauugg. He is making it so hard! I guess I can expect one of these every week. Great. Just making something that is already hard for me, even harder. I think I can. I think I can. I think I can.

What are you giving up/ doing extra for lent, if anything? Is it really hard for you? How are you getting through? How is the devil temping you?

Friday, March 7, 2014

It's all about perspective

I spent most of yesterday crying over the news that my son will probably have to have another surgery (to fix his hip socket) and that 2 vertebrae in his neck were fused together. I was morning all that he will never be able to do. I was worried about the future and if he was in any pain.

Then my wonderfully practical and common sense husband came home from work. I told him all about my worries and emotions (something I don't think he will ever understand) He said "why are you worrying about this?" I proceeded to explain myself (again) He just looked at me and asked "Did he smile today?" "well yea", "Did he turn his head like he usually does?" "well yea", "Is he as healthy as he has ever been?" "well yea", "After his last few surgeries, has he come out of surgery as well as they expected?" "well yea" Then he says "What are you worried about then? Seems to me like if we do the surgery we are only helping him to not have any pain in the future. We don't know what is all involved in the procedure or the recovery, but they said he should still learn how to walk. And this may even help him with that."

Man I hate it when he is right. Our son does smile a lot. He has come out of the last few surgeries just fine, if not better then expected. Nothing on our son has really changed. Just his diagnoses. And he has been dealing with these things all along. His neck has always been fused, and his hip coming out of the socket has been happening slowly. The only thing that has changed is....our knowledge and understanding of who our son is. This makes me feel better. I am not saying that I still don't have a thousand questions but I realize that our son is exactly how his has always been. And I will do anything to make his life the best that it can be.

I am so thankful for my husband and his ability to help me put things into perspective.
   

Thursday, March 6, 2014

2 steps forward,1 step back

2 steps forward, 1 step back. That is how our nurse put it and I think it fits perfectly. We had a really good week! Noelie got a shower chair that works great. Birth to three thought he would be ready for a walker by summer. He sat on his own for several minutes, a couple days in a row! And he did great at his doctor appointments. It was a great week.

Except today I spent what seemed like most of the day, crying. I haven't cried like that in a very long time. The clinic called and told me that they couldn't tell me the results of the ct scan until the doctor got back on the 13th! I kept asking and finally talked to the nurse in that department. She said she doesn't know what the doctor is going to recommend the next step be for sure but she could give me the results. He does have 2 vertebrae that are fused together. The spinal cord inside is not compromised at all, so that is the good news.

The reason for my tears was, in part being told I had to wait till the 13th to hear results, and hearing the results of the x-ray of his hips. The left side is slowing moving out of the socket. She said that this is pretty common for kiddos with muscle tone issues. To tight, and the muscle pulls it out. To loose, doesn't hold the bone in place. He may need surgery. We meet with the pediatric surgeon on Tuesday next week to discuss how soon it can be done, if we should even do it (past history of coming out of sedation has not been good), what this would entail for the procedure and recovery, and the big question we have...if we do it, or don't do it, will he be able to walk like birth to three thinks he will...and what we keep striving for?

I don't know what the future holds. I have so many questions. So many worries. Should we do it? Should we not? Can it wait? Should it wait? How long is the typical hospital stay? How long is recovery? Will it hold for the rest of his life or will there be more surgeries? Who will take care of Samuel while I am in the hospital with Noelie? Well it is late and I am going to try and turn my brain off.

Keep praying people...Thank you

Wednesday, March 5, 2014

Ash Wednesday

As I type this both boys are on the floor playing with their favorite toys. I try to give them play time without me there. Alone time is good right? Noelie is playing music and Sam is catching bugs on his mobile.

So today is my first day without going on Facebook. The morning was easy cause we were at the doctors office. This afternoon, after our nap, I was feeding Sam and going through withdrawal.  It was hard but I pushed through. I just looked down at his face and smiled.

SO the news we have been waiting for...the CT scan results! I don't have them yet. :( We did not meet with the doctor so I called at the end of the day. The doc was out of the office, but someone should call me tomorrow. Noelie did great. He cried when he first got on the table but he settled down and fell asleep! Not bad for the first time.

I learned how to do baby massage. Noelie wasn't to sure at first but he settled in and ending up enjoying it.

After Noelie's afternoon feeding I wanted to see if he would sit up again like he did the other day. He did! and for a bit longer this time. He was hunched over a bit more so I stopped him and let him rest. I am very excited about this. Birth to three said that kiddos that can sit on their own by age 2 are usually the ones that end up learning to walk. I am also very excited about this news!

I am anxious to get that phone call tomorrow but I know we will work around what ever the results are. Keeping our fingers crossed...

Tuesday, March 4, 2014

Fat Tuesday!

Today is the day! I am really nervous if I can really do this. I am giving up Facebook for Lent. I truly am addicted to it, especially since I got a smart phone. It is way too easy. Wish me luck. Pray for strength.

With that being said, I also need you to pray for Noelie. He is having a CT scan tomorrow to find out about 2 vertebrae in his neck possibly being fused together. They will also be checking his hips to make sure they are not moving upward from sitting too much. Pray that all goes well, he lays still, and that we get some answers.

For all of you that see this on Facebook...this means I will not be re-posting this on the my wall.  If you want to find out about the results of the scan or keep up with us during Lent (possibly longer) you need to look on the right side of this page and either enter your email in the "follow by email" area and confirm your email address, or you can click on the red G+ symbol to follow on Google. You will be able to post a comment through email if you click on the link attached to the email. This will open the blog post. At the bottom there is a section for comments. Please don't be a stranger. I would love to hear from you.

If there is something in your life that you think I would love to know about you can always just email me too. tfelix1612@gmail.com we could always get together too. I hope to re-connect to people on a personal level and be more productive at home.

Thank you for your support and prayers

Monday, March 3, 2014

Best. Day. Ever!


Look at what we got today! Noelie dosen't fit in the kitchen sink any more so we talked with our physical therapist in the birth to three program. This is what we came up with. It is great! It has 4 different height settings. The back and foot supports move and create all kinds of positions. It is made out of all plastic and mesh so it is easy to clean. It also has four velcro straps that are moveable so he can't slide off. The head support also moves up and down. It also moves closer together. Of course we had to try it out right away! I can't wait to try it out in a kiddy pool or the beach this summer! As you can hopefully see, there is quite a difference between the highest and lowest settings in the tub. The only bad thing is that insurance only pays for one of these every 7 years.

In between his eating I try to fit in therapy sessions. He stood up, with my help, for about 2 minutes! Then I sat him on the floor and tried to get him to sit up on his own. (we have been trying this with birth to three for awhile) The longest he has done it so far was about 20 seconds. Today he did it for 5 minutes! I got 2 minutes of it on video and got pictures!
I can only hope and pray that this progress continues. These two things made it a great day! I am so excited for tomorrow!